Thursday, November 12, 2009

Scared, Help Do I have Lymphoma or cancer?

Help, back in the beginning of February I began to feel bad. Not wanting to eat, abdominal discomfort,indigestion. Thought was my Crohns disease and began taking prednisone. I went to ER three times. Have had 3 abdominal/pelvic ct scans in feb, 2 chest xrays in feb, a small bowel follow through in march and upper and lower gi series in march. I was up to 80 mg pred and have now tapered off completely to zero for last 4 weeks, during the last two months i have developed a rapid heart beat, sweats and off and on fever. I have kept insisting to doc that i do not feel myself, he insists that its in my head or the crohns. He says all my scans and blood work come back ok. In last 4 days my fever has been getting more pronounced and having night sweats. Went to doc yesterday and he gave me antibiotics, told him i was worried about lymphoma and he look at my neck glands and said everything look ok, have all the signs of lymphoma scared could the prednisone have hid the lymphoma from the scans?

Scared, Help Do I have Lymphoma or cancer?
I am guessing that you are having prednisone withdrawals from tapering off too quickly. Resume prednisone at 2 1/2 mg daily and then taper off very slowly at 1/2 mg per week. I bet within 12 hours of you taking the prednisone you will feel just fine. Ask your Dr for approval before you try what I suggested.





http://www.mayoclinic.com/health/steroid...





http://arthritis.about.com/od/prednisone...
Reply:It could be a hormone issue, an infection, thyroid problem and so on. You have the right to go to a different doctor. If you are not comfortable with what you are being told I would recommend switching doctors or getting another opinion.
Reply:Well wouldn't you have a palpable node perhaps in groin area or underarm? The prednisone could affect your blood counts but now that you have tapered off it you would have regular blood work. Did the Dr say why he was giving you antibiotics? Did he do a blood culture if he thought it was systemic infection? Hmm. Well dont try to diagnose and please dont panic; but you may want to get 2nd opinion if you arent feeling right about this.
Reply:If the antibiotics have no effect, you may have a problem. [that was the clue for me] Stay in close touch with your doctor until you get the answers you need.


Here's the best site for info:


http://www.leukemia-lymphoma.org/hm_lls


Best wishes
Reply:haha your gonna die

flowers baby

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